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Emerging Research Directions in Adult Congenital Heart Disease: A Report From an NHLBI/ACHA Working Group

Journal of the American College of Cardiology, 2016-04, Vol.67 (16), p.1956-1964 [Peer Reviewed Journal]

Copyright © 2016 American College of Cardiology Foundation. Published by Elsevier Inc. All rights reserved. ;Copyright Elsevier Limited Apr 26, 2016 ;ISSN: 0735-1097 ;EISSN: 1558-3597 ;DOI: 10.1016/j.jacc.2016.01.062 ;PMID: 27102511

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Title:
Emerging Research Directions in Adult Congenital Heart Disease: A Report From an NHLBI/ACHA Working Group
Author: Gurvitz, Michelle ; Burns, Kristin M ; Brindis, Ralph ; Broberg, Craig S ; Daniels, Curt J ; Fuller, Stephanie M P N ; Honein, Margaret A ; Khairy, Paul ; Kuehl, Karen S ; Landzberg, Michael J ; Mahle, William T ; Mann, Douglas L ; Marelli, Ariane ; Newburger, Jane W ; Pearson, Gail D ; Starling, Randall C ; Tringali, Glenn R ; Valente, Anne Marie ; Wu, Joseph C ; Califf, Robert M
Subjects: Adult ; Adults ; Advocacy ; Age Factors ; Aortic Coarctation - diagnosis ; Aortic Coarctation - mortality ; Aortic Coarctation - surgery ; Cardiology ; Cardiovascular disease ; Cause of Death ; Collaboration ; Congenital diseases ; Congresses as Topic ; Consortia ; Epidemiology ; Female ; Heart Defects, Congenital - diagnosis ; Heart Defects, Congenital - mortality ; Heart Defects, Congenital - therapy ; Heart failure ; Humans ; Infant ; Infant, Newborn ; Infrastructure ; Male ; National Heart, Lung, and Blood Institute (U.S.) - standards ; Pediatrics ; Population ; Practice Guidelines as Topic ; Pregnancy ; Prognosis ; Qualitative Research ; Researchers ; Risk Assessment ; Scientists ; Sex Factors ; Studies ; Survival Analysis ; Tetralogy of Fallot - diagnosis ; Tetralogy of Fallot - mortality ; Tetralogy of Fallot - surgery ; United States ; Working groups
Is Part Of: Journal of the American College of Cardiology, 2016-04, Vol.67 (16), p.1956-1964
Description: Congenital heart disease (CHD) is the most common birth defect, affecting about 0.8% of live births. Advances in recent decades have allowed >85% of children with CHD to survive to adulthood, creating a growing population of adults with CHD. Little information exists regarding survival, demographics, late outcomes, and comorbidities in this emerging group, and multiple barriers impede research in adult CHD. The National Heart, Lung, and Blood Institute and the Adult Congenital Heart Association convened a multidisciplinary working group to identify high-impact research questions in adult CHD. This report summarizes the meeting discussions in the broad areas of CHD-related heart failure, vascular disease, and multisystem complications. High-priority subtopics identified included heart failure in tetralogy of Fallot, mechanical circulatory support/transplantation, sudden cardiac death, vascular outcomes in coarctation of the aorta, late outcomes in single-ventricle disease, cognitive and psychiatric issues, and pregnancy.
Publisher: United States: Elsevier Limited
Language: English
Identifier: ISSN: 0735-1097
EISSN: 1558-3597
DOI: 10.1016/j.jacc.2016.01.062
PMID: 27102511
Source: Freely Accessible Journals
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Emerging Research Directions in Adult Congenital Heart Disease: A Report From an NHLBI/ACHA Working Group

Copyright © 2016 American College of Cardiology Foundation. Published by Elsevier Inc. All rights reserved. ;Copyright Elsevier Limited Apr 26, 2016 ;ISSN: 0735-1097 ;EISSN: 1558-3597 ;DOI: 10.1016/j.jacc.2016.01.062 ;PMID: 27102511

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