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1
Genes, cells, and biobanks: Yes, there's still a consent problem
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Genes, cells, and biobanks: Yes, there's still a consent problem

PLoS biology, 2017-07, Vol.15 (7), p.e2002654-e2002654 [Peer Reviewed Journal]

2017 Public Library of Science. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited: Caulfield T, Murdoch B (2017) Genes, cells, and biobanks: Yes, there’s still a consent problem. PLoS Biol 15(7): e2002654. https://doi.org/10.1371/journal.pbio.2002654 ;2017 Caulfield, Murdoch 2017 Caulfield, Murdoch ;2017 Public Library of Science. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited: Caulfield T, Murdoch B (2017) Genes, cells, and biobanks: Yes, there’s still a consent problem. PLoS Biol 15(7): e2002654. https://doi.org/10.1371/journal.pbio.2002654 ;ISSN: 1545-7885 ;ISSN: 1544-9173 ;EISSN: 1545-7885 ;DOI: 10.1371/journal.pbio.2002654 ;PMID: 28742850

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2
Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research
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Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research

BMJ (Online), 2015-05, Vol.350 (may07 31), p.h2146-h2146 [Peer Reviewed Journal]

BMJ Publishing Group Ltd 2015 ;ISSN: 1756-1833 ;EISSN: 1756-1833 ;DOI: 10.1136/bmj.h2146 ;PMID: 25952952

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3
Henrietta Lacks: science must right a historical wrong
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Henrietta Lacks: science must right a historical wrong

Nature (London), 2020-09, Vol.585 (7823), p.7-7 [Peer Reviewed Journal]

ISSN: 0028-0836 ;EISSN: 1476-4687 ;DOI: 10.1038/d41586-020-02494-z ;PMID: 32873976

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4
Diversity in Clinical and Biomedical Research: A Promise Yet to Be Fulfilled
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Diversity in Clinical and Biomedical Research: A Promise Yet to Be Fulfilled

PLoS medicine, 2015-12, Vol.12 (12), p.e1001918-e1001918 [Peer Reviewed Journal]

COPYRIGHT 2015 Public Library of Science ;COPYRIGHT 2015 Public Library of Science ;2015 Oh et al 2015 Oh et al ;2015 Public Library of Science. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited: Oh SS, Galanter J, Thakur N, Pino-Yanes M, Barcelo NE, White MJ, et al. (2015) Diversity in Clinical and Biomedical Research: A Promise Yet to Be Fulfilled. PLoS Med 12(12): e1001918. doi:10.1371/journal.pmed.1001918 ;ISSN: 1549-1676 ;ISSN: 1549-1277 ;EISSN: 1549-1676 ;DOI: 10.1371/journal.pmed.1001918 ;PMID: 26671224

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5
Guidelines for the use of cell lines in biomedical research
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Guidelines for the use of cell lines in biomedical research

British journal of cancer, 2014-09, Vol.111 (6), p.1021-1046 [Peer Reviewed Journal]

Copyright Nature Publishing Group Sep 9, 2014 ;Copyright © 2014 Cancer Research UK 2014 Cancer Research UK ;ISSN: 0007-0920 ;EISSN: 1532-1827 ;DOI: 10.1038/bjc.2014.166 ;PMID: 25117809 ;CODEN: BJCAAI

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6
Diversity and inclusion for the All of Us research program: A scoping review
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Diversity and inclusion for the All of Us research program: A scoping review

PloS one, 2020-07, Vol.15 (7), p.e0234962-e0234962 [Peer Reviewed Journal]

COPYRIGHT 2020 Public Library of Science ;COPYRIGHT 2020 Public Library of Science ;This is an open access article, free of all copyright, and may be freely reproduced, distributed, transmitted, modified, built upon, or otherwise used by anyone for any lawful purpose. The work is made available under the Creative Commons CC0 public domain dedication: https://creativecommons.org/publicdomain/zero/1.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1932-6203 ;EISSN: 1932-6203 ;DOI: 10.1371/journal.pone.0234962 ;PMID: 32609747

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7
Neuroethics Questions to Guide Ethical Research in the International Brain Initiatives
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Neuroethics Questions to Guide Ethical Research in the International Brain Initiatives

Neuron (Cambridge, Mass.), 2018-10, Vol.100 (1), p.19-36 [Peer Reviewed Journal]

2018 Elsevier Inc. ;Copyright © 2018 Elsevier Inc. All rights reserved. ;Copyright Elsevier Limited Oct 10, 2018 ;ISSN: 0896-6273 ;ISSN: 1097-4199 ;EISSN: 1097-4199 ;DOI: 10.1016/j.neuron.2018.09.021 ;PMID: 30308169

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8
Prevalence of questionable research practices, research misconduct and their potential explanatory factors: A survey among academic researchers in The Netherlands
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Prevalence of questionable research practices, research misconduct and their potential explanatory factors: A survey among academic researchers in The Netherlands

PloS one, 2022-02, Vol.17 (2), p.e0263023-e0263023 [Peer Reviewed Journal]

COPYRIGHT 2022 Public Library of Science ;2022 Gopalakrishna et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;2022 Gopalakrishna et al 2022 Gopalakrishna et al ;ISSN: 1932-6203 ;EISSN: 1932-6203 ;DOI: 10.1371/journal.pone.0263023 ;PMID: 35171921

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9
Data sharing and privacy issues in neuroimaging research: Opportunities, obstacles, challenges, and monsters under the bed
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Data sharing and privacy issues in neuroimaging research: Opportunities, obstacles, challenges, and monsters under the bed

Human brain mapping, 2022-01, Vol.43 (1), p.278-291 [Peer Reviewed Journal]

2020 The Authors. published by Wiley Periodicals LLC. ;2020 The Authors. Human Brain Mapping published by Wiley Periodicals LLC. ;2020. This article is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1065-9471 ;EISSN: 1097-0193 ;DOI: 10.1002/hbm.25120 ;PMID: 32621651

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10
Patients’ roles and rights in research
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Patients’ roles and rights in research

BMJ (Online), 2018-07, Vol.362, p.k3193-k3193 [Peer Reviewed Journal]

Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to ;Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go tohttp://group.bmj.com/group/rights-licensing/permissions2018BMJ ;ISSN: 0959-8138 ;EISSN: 1756-1833 ;DOI: 10.1136/bmj.k3193 ;PMID: 30045909

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11
Misconduct Policies, Academic Culture and Career Stage, Not Gender or Pressures to Publish, Affect Scientific Integrity
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Misconduct Policies, Academic Culture and Career Stage, Not Gender or Pressures to Publish, Affect Scientific Integrity

PloS one, 2015-06, Vol.10 (6), p.e0127556-e0127556 [Peer Reviewed Journal]

COPYRIGHT 2015 Public Library of Science ;COPYRIGHT 2015 Public Library of Science ;2015 Fanelli et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;2015 Fanelli et al 2015 Fanelli et al ;ISSN: 1932-6203 ;EISSN: 1932-6203 ;DOI: 10.1371/journal.pone.0127556 ;PMID: 26083381

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12
Which COVID studies pose a biohazard? Lack of clarity hampers research
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Which COVID studies pose a biohazard? Lack of clarity hampers research

Nature (London), 2022-11, Vol.611 (7934), p.17-18 [Peer Reviewed Journal]

ISSN: 0028-0836 ;EISSN: 1476-4687 ;DOI: 10.1038/d41586-022-03344-w ;PMID: 36271042

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13
The Common Rule, Updated
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The Common Rule, Updated

The New England journal of medicine, 2017-02, Vol.376 (7), p.613-615 [Peer Reviewed Journal]

Copyright © 2017 Massachusetts Medical Society. All rights reserved. ;ISSN: 0028-4793 ;EISSN: 1533-4406 ;DOI: 10.1056/NEJMp1700736 ;PMID: 28103146

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14
Males still dominate animal studies
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Males still dominate animal studies

Nature (London), 2010-06, Vol.465 (7299), p.690-690 [Peer Reviewed Journal]

Copyright Nature Publishing Group Jun 10, 2010 ;ISSN: 0028-0836 ;EISSN: 1476-4687 ;DOI: 10.1038/465690a ;PMID: 20535186 ;CODEN: NATUAS

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15
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
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Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?

European journal of human genetics : EJHG, 2013-09, Vol.21 (9), p.897-902 [Peer Reviewed Journal]

Copyright Nature Publishing Group Sep 2013 ;Copyright © 2013 Macmillan Publishers Limited 2013 Macmillan Publishers Limited ;ISSN: 1018-4813 ;EISSN: 1476-5438 ;DOI: 10.1038/ejhg.2012.282 ;PMID: 23299918

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16
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts
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The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts

Science and engineering ethics, 2016-04, Vol.22 (2), p.303-341 [Peer Reviewed Journal]

Springer Science+Business Media Dordrecht 2015 ;Springer Science+Business Media Dordrecht 2016 ;ISSN: 1353-3452 ;EISSN: 1471-5546 ;DOI: 10.1007/s11948-015-9652-2 ;PMID: 26002496

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17
Guidelines for the welfare and use of animals in cancer research
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Guidelines for the welfare and use of animals in cancer research

British journal of cancer, 2010-05, Vol.102 (11), p.1555-1577 [Peer Reviewed Journal]

2015 INIST-CNRS ;Copyright Nature Publishing Group May 25, 2010 ;Copyright © 2010 Cancer Research UK 2010 Cancer Research UK ;ISSN: 0007-0920 ;EISSN: 1532-1827 ;DOI: 10.1038/sj.bjc.6605642 ;PMID: 20502460 ;CODEN: BJCAAI

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18
The concept of 'vulnerability' in research ethics: an in-depth analysis of policies and guidelines
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The concept of 'vulnerability' in research ethics: an in-depth analysis of policies and guidelines

Health research policy and systems, 2017-02, Vol.15 (1), p.8-8, Article 8 [Peer Reviewed Journal]

COPYRIGHT 2017 BioMed Central Ltd. ;Copyright BioMed Central 2017 ;The Author(s). 2017 ;ISSN: 1478-4505 ;EISSN: 1478-4505 ;DOI: 10.1186/s12961-016-0164-6 ;PMID: 28173859

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19
“I don’t want to be Henrietta Lacks”: diverse patient perspectives on donating biospecimens for precision medicine research
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“I don’t want to be Henrietta Lacks”: diverse patient perspectives on donating biospecimens for precision medicine research

Genetics in medicine, 2019-01, Vol.21 (1), p.107-113 [Peer Reviewed Journal]

2019 The Author(s) ;Copyright Nature Publishing Group Jan 2019 ;American College of Medical Genetics and Genomics 2018. ;ISSN: 1098-3600 ;EISSN: 1530-0366 ;DOI: 10.1038/s41436-018-0032-6 ;PMID: 29887604

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20
From patients to partners: participant-centric initiatives in biomedical research
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From patients to partners: participant-centric initiatives in biomedical research

Nature reviews. Genetics, 2012-05, Vol.13 (5), p.371-376 [Peer Reviewed Journal]

2015 INIST-CNRS ;COPYRIGHT 2012 Nature Publishing Group ;COPYRIGHT 2012 Nature Publishing Group ;Copyright Nature Publishing Group May 2012 ;ISSN: 1471-0056 ;ISSN: 1471-0064 ;EISSN: 1471-0064 ;DOI: 10.1038/nrg3218 ;PMID: 22473380

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