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1
Evidence-based ethics
Evidence-based ethics
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Evidence-based ethics

British dental journal, 2019-07, Vol.227 (2), p.75-75 [Peer Reviewed Journal]

Copyright Nature Publishing Group Jul 2019 ;ISSN: 0007-0610 ;EISSN: 1476-5373 ;DOI: 10.1038/s41415-019-0570-6 ;PMID: 31350476

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2
Is there a line between ethics and market competition? Lights and shades of the withdrawal of collagenase treatment for Peyronie's disease
Is there a line between ethics and market competition? Lights and shades of the withdrawal of collagenase treatment for Peyronie's disease
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Is there a line between ethics and market competition? Lights and shades of the withdrawal of collagenase treatment for Peyronie's disease

International journal of impotence research, 2022-12, Vol.34 (8), p.733-734 [Peer Reviewed Journal]

2021. The Author(s), under exclusive licence to Springer Nature Limited. ;The Author(s), under exclusive licence to Springer Nature Limited 2021. ;ISSN: 0955-9930 ;EISSN: 1476-5489 ;DOI: 10.1038/s41443-021-00469-w ;PMID: 34552228

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3
Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study
Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study
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Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study

Genetics in medicine, 2019-05, Vol.21 (5), p.1100-1110 [Peer Reviewed Journal]

Copyright Nature Publishing Group May 2019 ;ISSN: 1098-3600 ;EISSN: 1530-0366 ;DOI: 10.1038/s41436-018-0308-x ;PMID: 30287922

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4
Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature
Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature
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Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature

European journal of human genetics : EJHG, 2015-12, Vol.23 (12), p.1607-1614 [Peer Reviewed Journal]

Copyright Nature Publishing Group Dec 2015 ;Copyright © 2015 Macmillan Publishers Limited 2015 Macmillan Publishers Limited ;ISSN: 1018-4813 ;EISSN: 1476-5438 ;DOI: 10.1038/ejhg.2015.27 ;PMID: 25735479

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5
Rethinking the ethical principles of genomic medicine services
Rethinking the ethical principles of genomic medicine services
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Rethinking the ethical principles of genomic medicine services

European journal of human genetics : EJHG, 2020-02, Vol.28 (2), p.147-154 [Peer Reviewed Journal]

This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;The Author(s) 2019. This work is published under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;The Author(s) 2019 ;ISSN: 1018-4813 ;EISSN: 1476-5438 ;DOI: 10.1038/s41431-019-0507-1 ;PMID: 31534213

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6
The risk of re-identification versus the need to identify individuals in rare disease research
The risk of re-identification versus the need to identify individuals in rare disease research
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The risk of re-identification versus the need to identify individuals in rare disease research

European journal of human genetics : EJHG, 2016-11, Vol.24 (11), p.1553-1558 [Peer Reviewed Journal]

Copyright Nature Publishing Group Nov 2016 ;Copyright © 2016 Macmillan Publishers Limited 2016 Macmillan Publishers Limited ;ISSN: 1018-4813 ;ISSN: 1476-5438 ;EISSN: 1476-5438 ;DOI: 10.1038/ejhg.2016.52 ;PMID: 27222291

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7
Is there a duty to reinterpret genetic data? The ethical dimensions
Is there a duty to reinterpret genetic data? The ethical dimensions
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Is there a duty to reinterpret genetic data? The ethical dimensions

Genetics in medicine, 2020-03, Vol.22 (3), p.633-639 [Peer Reviewed Journal]

2020 The Author(s) ;2019© American College of Medical Genetics and Genomics 2019 ;American College of Medical Genetics and Genomics 2019. ;ISSN: 1098-3600 ;EISSN: 1530-0366 ;DOI: 10.1038/s41436-019-0679-7 ;PMID: 31616070

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8
Hippocratic ideal, Faustian bargain and Damocles' sword: erosion of patient autonomy in obstetrics
Hippocratic ideal, Faustian bargain and Damocles' sword: erosion of patient autonomy in obstetrics
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Hippocratic ideal, Faustian bargain and Damocles' sword: erosion of patient autonomy in obstetrics

Journal of perinatology, 2009-11, Vol.29 (11), p.721-725 [Peer Reviewed Journal]

COPYRIGHT 2009 Nature Publishing Group ;Copyright Nature Publishing Group Nov 2009 ;Nature Publishing Group 2009. ;ISSN: 0743-8346 ;EISSN: 1476-5543 ;DOI: 10.1038/jp.2009.123 ;PMID: 19861969

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9
Patient and public perspectives on cell and gene therapies: a systematic review
Patient and public perspectives on cell and gene therapies: a systematic review
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Patient and public perspectives on cell and gene therapies: a systematic review

Nature communications, 2020-12, Vol.11 (1), p.6265-6265, Article 6265 [Peer Reviewed Journal]

The Author(s) 2020. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;The Author(s) 2020 ;ISSN: 2041-1723 ;EISSN: 2041-1723 ;DOI: 10.1038/s41467-020-20096-1 ;PMID: 33293538

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10
An urgent call to raise the bar in oncology
An urgent call to raise the bar in oncology
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An urgent call to raise the bar in oncology

British journal of cancer, 2021-11, Vol.125 (11), p.1477-1485 [Peer Reviewed Journal]

2021. The Author(s). ;The Author(s) 2021. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;The Author(s) 2021 ;ISSN: 0007-0920 ;EISSN: 1532-1827 ;DOI: 10.1038/s41416-021-01495-7 ;PMID: 34400802

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11
International Charter of principles for sharing bio-specimens and data
International Charter of principles for sharing bio-specimens and data
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International Charter of principles for sharing bio-specimens and data

European journal of human genetics : EJHG, 2015-06, Vol.23 (6), p.721-728 [Peer Reviewed Journal]

Copyright Nature Publishing Group Jun 2015 ;Copyright © 2015 Macmillan Publishers Limited 2015 Macmillan Publishers Limited ;ISSN: 1018-4813 ;ISSN: 1476-5438 ;EISSN: 1476-5438 ;DOI: 10.1038/ejhg.2014.197 ;PMID: 25248399

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12
Dispute between physicians and family on surgical treatment for an infant with ultra short gut syndrome: the perspective of an Ethics Committee
Dispute between physicians and family on surgical treatment for an infant with ultra short gut syndrome: the perspective of an Ethics Committee
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Dispute between physicians and family on surgical treatment for an infant with ultra short gut syndrome: the perspective of an Ethics Committee

Journal of perinatology, 2018-07, Vol.38 (7), p.781-784 [Peer Reviewed Journal]

Copyright Nature Publishing Group Jul 2018 ;ISSN: 0743-8346 ;EISSN: 1476-5543 ;DOI: 10.1038/s41372-018-0162-3 ;PMID: 29970914

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13
Treatment ethics, quality of life and health economics in the management of hematopoietic malignancies in older patients
Treatment ethics, quality of life and health economics in the management of hematopoietic malignancies in older patients
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Treatment ethics, quality of life and health economics in the management of hematopoietic malignancies in older patients

Bone marrow transplantation (Basingstoke), 2015-09, Vol.50 (9), p.1145-1149 [Peer Reviewed Journal]

COPYRIGHT 2015 Nature Publishing Group ;COPYRIGHT 2015 Nature Publishing Group ;Copyright Nature Publishing Group Sep 2015 ;Macmillan Publishers Limited 2015. ;ISSN: 0268-3369 ;EISSN: 1476-5365 ;DOI: 10.1038/bmt.2015.130 ;PMID: 26052908

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14
Anencephalic organ donation after cardiac death: a case report on practicalities and ethics
Anencephalic organ donation after cardiac death: a case report on practicalities and ethics
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Anencephalic organ donation after cardiac death: a case report on practicalities and ethics

Journal of perinatology, 2015-10, Vol.35 (10), p.785-787 [Peer Reviewed Journal]

COPYRIGHT 2015 Nature Publishing Group ;COPYRIGHT 2015 Nature Publishing Group ;Copyright Nature Publishing Group Oct 2015 ;Nature America, Inc. 2015. ;ISSN: 0743-8346 ;EISSN: 1476-5543 ;DOI: 10.1038/jp.2015.72 ;PMID: 26412404

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15
Factors influencing NCGENES research participants' requests for non-medically actionable secondary findings
Factors influencing NCGENES research participants' requests for non-medically actionable secondary findings
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Factors influencing NCGENES research participants' requests for non-medically actionable secondary findings

Genetics in medicine, 2019-05, Vol.21 (5), p.1092-1099 [Peer Reviewed Journal]

Copyright Nature Publishing Group May 2019 ;ISSN: 1098-3600 ;EISSN: 1530-0366 ;DOI: 10.1038/s41436-018-0294-z ;PMID: 30237575

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16
The impact of unsolicited findings in clinical exome sequencing, a qualitative interview study
The impact of unsolicited findings in clinical exome sequencing, a qualitative interview study
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The impact of unsolicited findings in clinical exome sequencing, a qualitative interview study

European journal of human genetics : EJHG, 2021-06, Vol.29 (6), p.930-939 [Peer Reviewed Journal]

The Author(s), under exclusive licence to European Society of Human Genetics 2021. ;The Author(s), under exclusive licence to European Society of Human Genetics 2021 ;ISSN: 1018-4813 ;EISSN: 1476-5438 ;DOI: 10.1038/s41431-021-00834-9 ;PMID: 33637888

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17
Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process
Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process
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Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process

European journal of human genetics : EJHG, 2013-10, Vol.21 (10), p.1054-1059 [Peer Reviewed Journal]

Copyright Nature Publishing Group Oct 2013 ;Copyright © 2013 Macmillan Publishers Limited 2013 Macmillan Publishers Limited ;ISSN: 1018-4813 ;EISSN: 1476-5438 ;DOI: 10.1038/ejhg.2012.297 ;PMID: 23321621

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18
Research participants in NGS studies want to know about incidental findings
Research participants in NGS studies want to know about incidental findings
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Research participants in NGS studies want to know about incidental findings

European journal of human genetics : EJHG, 2015-10, Vol.23 (10), p.1423-1426 [Peer Reviewed Journal]

Copyright Nature Publishing Group Oct 2015 ;Copyright © 2015 Macmillan Publishers Limited 2015 Macmillan Publishers Limited ;ISSN: 1018-4813 ;EISSN: 1476-5438 ;DOI: 10.1038/ejhg.2014.298 ;PMID: 25604854

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19
The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe
The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe
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The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe

European journal of human genetics : EJHG, 2012-09, Vol.20 (9), p.911-916 [Peer Reviewed Journal]

2015 INIST-CNRS ;Copyright Nature Publishing Group Sep 2012 ;Copyright © 2012 Macmillan Publishers Limited 2012 Macmillan Publishers Limited ;ISSN: 1018-4813 ;EISSN: 1476-5438 ;DOI: 10.1038/ejhg.2012.56 ;PMID: 22453292

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20
Recontacting in clinical practice: an investigation of the views of healthcare professionals and clinical scientists in the United Kingdom
Recontacting in clinical practice: an investigation of the views of healthcare professionals and clinical scientists in the United Kingdom
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Recontacting in clinical practice: an investigation of the views of healthcare professionals and clinical scientists in the United Kingdom

European journal of human genetics : EJHG, 2017-02, Vol.25 (3), p.275-279 [Peer Reviewed Journal]

Copyright Nature Publishing Group Mar 2017 ;Copyright © 2017 The Author(s) 2017 The Author(s) ;ISSN: 1018-4813 ;EISSN: 1476-5438 ;DOI: 10.1038/ejhg.2016.188 ;PMID: 28051074

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