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1
Measuring the well-being of people with dementia: a conceptual scoping review
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Measuring the well-being of people with dementia: a conceptual scoping review

Health and quality of life outcomes, 2020-07, Vol.18 (1), p.249-249, Article 249 [Peer Reviewed Journal]

COPYRIGHT 2020 BioMed Central Ltd. ;2020. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;The Author(s) 2020 ;ISSN: 1477-7525 ;EISSN: 1477-7525 ;DOI: 10.1186/s12955-020-01440-x ;PMID: 32709238

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2
Keeping track of and recognizing the value of Public Involvement work in dementia research
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Keeping track of and recognizing the value of Public Involvement work in dementia research

Frontiers in neurology, 2022-11, Vol.13, p.1031831-1031831 [Peer Reviewed Journal]

Copyright © 2022 Georges, Diaz-Ponce, Lamirel, Moradi-Bachiller and Gove. 2022 Georges, Diaz-Ponce, Lamirel, Moradi-Bachiller and Gove ;ISSN: 1664-2295 ;EISSN: 1664-2295 ;DOI: 10.3389/fneur.2022.1031831

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3
Wearable Devices for Assessing Function in Alzheimer's Disease: A European Public Involvement Activity About the Features and Preferences of Patients and Caregivers
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Wearable Devices for Assessing Function in Alzheimer's Disease: A European Public Involvement Activity About the Features and Preferences of Patients and Caregivers

Frontiers in aging neuroscience, 2021-04, Vol.13, p.643135-643135 [Peer Reviewed Journal]

Copyright © 2021 Stavropoulos, Lazarou, Diaz, Gove, Georges, Manyakov, Pich, Hinds, Tsolaki, Nikolopoulos, Kompatsiaris and the RADAR-AD Consortium. ;2021. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;Copyright © 2021 Stavropoulos, Lazarou, Diaz, Gove, Georges, Manyakov, Pich, Hinds, Tsolaki, Nikolopoulos, Kompatsiaris and the RADAR-AD Consortium. 2021 Stavropoulos, Lazarou, Diaz, Gove, Georges, Manyakov, Pich, Hinds, Tsolaki, Nikolopoulos, Kompatsiaris and the RADAR-AD Consortium ;ISSN: 1663-4365 ;EISSN: 1663-4365 ;DOI: 10.3389/fnagi.2021.643135 ;PMID: 33912025

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4
An evaluation of palliative care contents in national dementia strategies in reference to the European Association for Palliative Care white paper
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An evaluation of palliative care contents in national dementia strategies in reference to the European Association for Palliative Care white paper

International psychogeriatrics, 2015-09, Vol.27 (9), p.1551-1561 [Peer Reviewed Journal]

Copyright © International Psychogeriatric Association 2015 ;ISSN: 1041-6102 ;EISSN: 1741-203X ;DOI: 10.1017/S1041610215000150 ;PMID: 25678323

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5
General practitioners' perceptions of the stigma of dementia and the role of reciprocity
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General practitioners' perceptions of the stigma of dementia and the role of reciprocity

Dementia (London, England), 2017-10, Vol.16 (7), p.948 [Peer Reviewed Journal]

EISSN: 1741-2684 ;DOI: 10.1177/1471301215625657 ;PMID: 26759447

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6
Ethical challenges of using remote monitoring technologies for clinical research: A case study of the role of local research ethics committees in the RADAR-AD study
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Ethical challenges of using remote monitoring technologies for clinical research: A case study of the role of local research ethics committees in the RADAR-AD study

PloS one, 2023-07, Vol.18 (7), p.e0285807-e0285807 [Peer Reviewed Journal]

Copyright: © 2023 Muurling et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. ;COPYRIGHT 2023 Public Library of Science ;2023 Muurling et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;2023 Muurling et al 2023 Muurling et al ;2023 Muurling et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1932-6203 ;EISSN: 1932-6203 ;DOI: 10.1371/journal.pone.0285807 ;PMID: 37418385

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7
Remote monitoring technologies in Alzheimer's disease: design of the RADAR-AD study
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Remote monitoring technologies in Alzheimer's disease: design of the RADAR-AD study

Alzheimer's research & therapy, 2021-04, Vol.13 (1), p.89-89, Article 89 [Peer Reviewed Journal]

COPYRIGHT 2021 BioMed Central Ltd. ;COPYRIGHT 2021 BioMed Central Ltd. ;2021. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;The Author(s) 2021 ;ISSN: 1758-9193 ;EISSN: 1758-9193 ;DOI: 10.1186/s13195-021-00825-4 ;PMID: 33892789

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8
Understanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study
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Understanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study

Health expectations : an international journal of public participation in health care and health policy, 2021-04, Vol.24 (2), p.601-616 [Peer Reviewed Journal]

2021 The Authors. published by John Wiley & Sons Ltd. ;2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. ;COPYRIGHT 2021 Blackwell Publishers Ltd. ;COPYRIGHT 2021 John Wiley & Sons, Inc. ;2021. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1369-6513 ;EISSN: 1369-7625 ;DOI: 10.1111/hex.13207 ;PMID: 33599067

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9
Selecting Remote Measurement Technologies to Optimize Assessment of Function in Early Alzheimer's Disease: A Case Study
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Selecting Remote Measurement Technologies to Optimize Assessment of Function in Early Alzheimer's Disease: A Case Study

Frontiers in psychiatry, 2020-11, Vol.11, p.582207-582207 [Peer Reviewed Journal]

COPYRIGHT 2020 Frontiers Research Foundation ;Copyright © 2020 Owens, Hinds, Manyakov, Stavropoulos, Lavelle, Gove, Diaz-Ponce and Aarsland. 2020 Owens, Hinds, Manyakov, Stavropoulos, Lavelle, Gove, Diaz-Ponce and Aarsland ;ISSN: 1664-0640 ;EISSN: 1664-0640 ;DOI: 10.3389/fpsyt.2020.582207 ;PMID: 33250792

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10
Conducting public involvement in dementia research: The contribution of the European Working Group of People with Dementia to the ROADMAP project
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Conducting public involvement in dementia research: The contribution of the European Working Group of People with Dementia to the ROADMAP project

Health expectations : an international journal of public participation in health care and health policy, 2021-06, Vol.24 (3), p.757-765 [Peer Reviewed Journal]

2021 The Authors. published by John Wiley & Sons Ltd. ;2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. ;COPYRIGHT 2021 John Wiley & Sons, Inc. ;2021. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1369-6513 ;ISSN: 1369-7625 ;EISSN: 1369-7625 ;DOI: 10.1111/hex.13246 ;PMID: 33822448

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11
Digital endpoints in clinical trials of Alzheimer's disease and other neurodegenerative diseases: challenges and opportunities
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Article
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Digital endpoints in clinical trials of Alzheimer's disease and other neurodegenerative diseases: challenges and opportunities

Frontiers in neurology, 2023, Vol.14, p.1210974-1210974 [Peer Reviewed Journal]

Copyright © 2023 Brem, Kuruppu, de Boer, Muurling, Diaz-Ponce, Gove, Curcic, Pilotto, Ng, Cummins, Malzbender, Nies, Erdemli, Graeber, Narayan, Rochester, Maetzler, Aarsland and on behalf of the RADAR-AD Consortium. ;Copyright © 2023 Brem, Kuruppu, de Boer, Muurling, Diaz-Ponce, Gove, Curcic, Pilotto, Ng, Cummins, Malzbender, Nies, Erdemli, Graeber, Narayan, Rochester, Maetzler, Aarsland and on behalf of the RADAR-AD Consortium. 2023 Brem, Kuruppu, de Boer, Muurling, Diaz-Ponce, Gove, Curcic, Pilotto, Ng, Cummins, Malzbender, Nies, Erdemli, Graeber, Narayan, Rochester, Maetzler, Aarsland and on behalf of the RADAR-AD Consortium ;ISSN: 1664-2295 ;EISSN: 1664-2295 ;DOI: 10.3389/fneur.2023.1210974 ;PMID: 37435159

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12
Participatory development of a framework to actively involve people living with dementia and those from their social network, and healthcare professionals in conducting a systematic review: the DECIDE-SR protocol
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Participatory development of a framework to actively involve people living with dementia and those from their social network, and healthcare professionals in conducting a systematic review: the DECIDE-SR protocol

Research involvement and engagement, 2023-07, Vol.9 (1), p.52-52, Article 52 [Peer Reviewed Journal]

2023. The Author(s). ;COPYRIGHT 2023 BioMed Central Ltd. ;2023. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;The Author(s) 2023 ;ISSN: 2056-7529 ;EISSN: 2056-7529 ;DOI: 10.1186/s40900-023-00461-2 ;PMID: 37434210

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13
Intelligent digital tools for screening of brain connectivity and dementia risk estimation in people affected by mild cognitive impairment: the AI-Mind clinical study protocol
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Article
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Intelligent digital tools for screening of brain connectivity and dementia risk estimation in people affected by mild cognitive impairment: the AI-Mind clinical study protocol

Frontiers in neurorobotics, 2023, Vol.17, p.1289406-1289406 [Peer Reviewed Journal]

Copyright © 2024 Haraldsen, Hatlestad-Hall, Marra, Renvall, Maestú, Acosta-Hernández, Alfonsin, Andersson, Anand, Ayllón, Babic, Belhadi, Birck, Bruña, Caraglia, Carrarini, Christensen, Cicchetti, Daugbjerg, Di Bidino, Diaz-Ponce, Drews, Giuffrè, Georges, Gil-Gregorio, Gove, Govers, Hallock, Hietanen, Holmen, Hotta, Kaski, Khadka, Kinnunen, Koivisto, Kulashekhar, Larsen, Liljeström, Lind, Marcos Dolado, Marshall, Merz, Miraglia, Montonen, Mäntynen, Øksengård, Olazarán, Paajanen, Peña, Peña, Peniche, Perez, Radwan, Ramírez-Toraño, Rodríguez-Pedrero, Saarinen, Salas-Carrillo, Salmelin, Sousa, Suyuthi, Toft, Toharia, Tveitstøl, Tveter, Upreti, Vermeulen, Vecchio, Yazidi and Rossini. ;2024. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;info:eu-repo/semantics/openAccess ;ISSN: 1662-5218 ;EISSN: 1662-5218 ;DOI: 10.3389/fnbot.2023.1289406 ;PMID: 38250599

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14
Identifying relevant outcomes in the progression of Alzheimer's disease; what do patients and care partners want to know about prognosis?
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Identifying relevant outcomes in the progression of Alzheimer's disease; what do patients and care partners want to know about prognosis?

Alzheimer's & dementia : translational research & clinical interventions, 2021, Vol.7 (1), p.e12189-n/a [Peer Reviewed Journal]

2021 The Authors. published by Wiley Periodicals, Inc. on behalf of Alzheimer's Association. ;2021 The Authors. Alzheimer's & Dementia: Translational Research & Clinical Interventions published by Wiley Periodicals, Inc. on behalf of Alzheimer's Association. ;2021. This work is published under http://creativecommons.org/licenses/by-nc-nd/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 2352-8737 ;EISSN: 2352-8737 ;DOI: 10.1002/trc2.12189 ;PMID: 34458555

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15
Involving people with dementia in dementia research: principles, challenges and practical examples
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Article
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Involving people with dementia in dementia research: principles, challenges and practical examples

Alzheimer's & dementia, 2023-12, Vol.19 (S20), p.n/a [Peer Reviewed Journal]

2023 the Alzheimer's Association. ;ISSN: 1552-5260 ;EISSN: 1552-5279 ;DOI: 10.1002/alz.071607

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16
Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement)
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Article
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Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement)

Aging & mental health, 2018-06, Vol.22 (6), p.723 [Peer Reviewed Journal]

EISSN: 1364-6915 ;DOI: 10.1080/13607863.2017.1317334 ;PMID: 28513210

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17
Ethically challenging situations faced by professional carers of people with dementia: training materials and the need for an organizational ethical infrastructure
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Article
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Ethically challenging situations faced by professional carers of people with dementia: training materials and the need for an organizational ethical infrastructure

International journal of integrated care, 2016-12, Vol.16 (6), p.68 [Peer Reviewed Journal]

ISSN: 1568-4156 ;EISSN: 1568-4156 ;DOI: 10.5334/ijic.3034

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18
White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care
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Article
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White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care

Palliative medicine, 2014-03, Vol.28 (3), p.197-209 [Peer Reviewed Journal]

The Author(s) 2013 ;SAGE Publications © Mar 2014 ;ISSN: 0269-2163 ;EISSN: 1477-030X ;DOI: 10.1177/0269216313493685 ;PMID: 23828874 ;CODEN: PAMDE2

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19
Defining advance care planning from the perspective of people with dementia: Focus groups with the European Working Group of People with dementia
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Article
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Defining advance care planning from the perspective of people with dementia: Focus groups with the European Working Group of People with dementia

Alzheimer's & dementia, 2023-06, Vol.19 (S5), p.n/a [Peer Reviewed Journal]

2023 the Alzheimer's Association. ;ISSN: 1552-5260 ;EISSN: 1552-5279 ;DOI: 10.1002/alz.063913

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20
Development of quality outcome indicators to improve the quality of urinary and faecal continence care
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Article
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Development of quality outcome indicators to improve the quality of urinary and faecal continence care

International Urogynecology Journal, 2019-01, Vol.30 (1), p.23-32 [Peer Reviewed Journal]

The Author(s) 2018 ;International Urogynecology Journal is a copyright of Springer, (2018). All Rights Reserved. © 2018. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 0937-3462 ;EISSN: 1433-3023 ;DOI: 10.1007/s00192-018-3768-2 ;PMID: 30327849

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