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1
Future of Rare Diseases Research 2017–2027: An IRDiRC Perspective
Future of Rare Diseases Research 2017–2027: An IRDiRC Perspective
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Future of Rare Diseases Research 2017–2027: An IRDiRC Perspective

Clinical and translational science, 2018-01, Vol.11 (1), p.21-27 [Peer Reviewed Journal]

2017 The Authors. Clinical and Translational Science published by Wiley Periodicals, Inc. on behalf of American Society for Clinical Pharmacology and Therapeutics ;2018. This work is published under http://creativecommons.org/licenses/by-nc/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1752-8054 ;EISSN: 1752-8062 ;DOI: 10.1111/cts.12500 ;PMID: 28796445

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2
The Structure of Clinical Translation: Efficiency, Information, and Ethics
The Structure of Clinical Translation: Efficiency, Information, and Ethics
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The Structure of Clinical Translation: Efficiency, Information, and Ethics

The Hastings Center report, 2015-03, Vol.45 (2), p.27-39 [Peer Reviewed Journal]

2015 The Hastings Center ;Copyright Blackwell Publishing Ltd. Mar-Apr 2015 ;ISSN: 0093-0334 ;EISSN: 1552-146X ;DOI: 10.1002/hast.433 ;PMID: 25628068 ;CODEN: HSCRAS

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3
Patients’ roles and rights in research
Patients’ roles and rights in research
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Patients’ roles and rights in research

BMJ (Online), 2018-07, Vol.362, p.k3193-k3193 [Peer Reviewed Journal]

Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to ;Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go tohttp://group.bmj.com/group/rights-licensing/permissions2018BMJ ;ISSN: 0959-8138 ;EISSN: 1756-1833 ;DOI: 10.1136/bmj.k3193 ;PMID: 30045909

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4
Clinical, pathological, and PAM50 gene expression features of HER2-low breast cancer
Clinical, pathological, and PAM50 gene expression features of HER2-low breast cancer
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Clinical, pathological, and PAM50 gene expression features of HER2-low breast cancer

NPJ breast cancer, 2021-01, Vol.7 (1), p.1-1, Article 1 [Peer Reviewed Journal]

The Author(s) 2021. This work is published under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;The Author(s) 2021 ;ISSN: 2374-4677 ;EISSN: 2374-4677 ;DOI: 10.1038/s41523-020-00208-2 ;PMID: 33397968

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5
COVID-19: global consequences for oncology
COVID-19: global consequences for oncology
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COVID-19: global consequences for oncology

The Lancet Oncology, 2020-04, Vol.21 (4), p.467-467 [Peer Reviewed Journal]

2020 Elsevier Ltd ;2020. Not withstanding the ProQuest Terms and Conditions, you may use this content in accordance with the associated terms available at https://www.elsevier.com/legal/elsevier-website-terms-and-conditions ;2020. Elsevier Ltd ;2020 Elsevier Ltd. All rights reserved. 2020 Elsevier Ltd ;ISSN: 1470-2045 ;EISSN: 1474-5488 ;DOI: 10.1016/S1470-2045(20)30175-3 ;PMID: 32240603

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6
COSMIC-312: mounting immunotherapy enigmas for hepatocellular carcinoma
COSMIC-312: mounting immunotherapy enigmas for hepatocellular carcinoma
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COSMIC-312: mounting immunotherapy enigmas for hepatocellular carcinoma

The lancet oncology, 2022-10, Vol.23 (10), p.e441-e441 [Peer Reviewed Journal]

2022 Elsevier Ltd ;2022. Elsevier Ltd ;ISSN: 1470-2045 ;EISSN: 1474-5488 ;DOI: 10.1016/S1470-2045(22)00497-1

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7
Precision Medicine: From Science To Value
Precision Medicine: From Science To Value
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Precision Medicine: From Science To Value

Health Affairs, 2018-05, Vol.37 (5), p.694-701 [Peer Reviewed Journal]

Copyright The People to People Health Foundation, Inc., Project HOPE May 2018 ;ISSN: 0278-2715 ;EISSN: 1544-5208 ;EISSN: 2694-233X ;DOI: 10.1377/hlthaff.2017.1624 ;PMID: 29733705

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8
Patient engagement in research: a systematic review
Patient engagement in research: a systematic review
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Patient engagement in research: a systematic review

BMC health services research, 2014-02, Vol.14 (1), p.89-89, Article 89 [Peer Reviewed Journal]

COPYRIGHT 2014 BioMed Central Ltd. ;2014 Domecq et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. ;Copyright © 2014 Domecq et al.; licensee BioMed Central Ltd. 2014 Domecq et al.; licensee BioMed Central Ltd. ;ISSN: 1472-6963 ;EISSN: 1472-6963 ;DOI: 10.1186/1472-6963-14-89 ;PMID: 24568690

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9
Neuropsychiatric outcomes of stroke
Neuropsychiatric outcomes of stroke
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Neuropsychiatric outcomes of stroke

Lancet neurology, 2014-05, Vol.13 (5), p.525-534 [Peer Reviewed Journal]

Elsevier Ltd ;2014 Elsevier Ltd ;Copyright © 2014 Elsevier Ltd. All rights reserved. ;Copyright Elsevier Limited May 2014 ;ISSN: 1474-4422 ;EISSN: 1474-4465 ;DOI: 10.1016/S1474-4422(14)70016-X ;PMID: 24685278 ;CODEN: LANCAO

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10
Duration of organ failure impacts mortality in acute pancreatitis
Duration of organ failure impacts mortality in acute pancreatitis
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Duration of organ failure impacts mortality in acute pancreatitis

Gut, 2020-03, Vol.69 (3), p.604-605 [Peer Reviewed Journal]

Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. ;2020 Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ . Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. 2020 ;ISSN: 0017-5749 ;EISSN: 1468-3288 ;DOI: 10.1136/gutjnl-2019-318241 ;PMID: 31233394

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11
Stakeholders welcome proposal on the European Health Data Space
Stakeholders welcome proposal on the European Health Data Space
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Stakeholders welcome proposal on the European Health Data Space

The lancet oncology, 2022-12, Vol.23 (12), p.1492-1492 [Peer Reviewed Journal]

2022 Elsevier Ltd ;2022. Elsevier Ltd ;ISSN: 1470-2045 ;EISSN: 1474-5488 ;DOI: 10.1016/S1470-2045(22)00691-X ;PMID: 36335972

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12
Unexplained post-acute infection syndromes
Unexplained post-acute infection syndromes
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Unexplained post-acute infection syndromes

Nature medicine, 2022-05, Vol.28 (5), p.911-923 [Peer Reviewed Journal]

2022. Springer Nature America, Inc. ;Springer Nature America, Inc. 2022. corrected publication 2022. Springer Nature or its licensor holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law. ;ISSN: 1078-8956 ;EISSN: 1546-170X ;DOI: 10.1038/s41591-022-01810-6 ;PMID: 35585196

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13
P146 Patient engagement in rare disease research: a new paradigm
P146 Patient engagement in rare disease research: a new paradigm
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P146 Patient engagement in rare disease research: a new paradigm

International journal of gynecological cancer, 2019-11, Vol.29 (Suppl 4), p.A146-A146 [Peer Reviewed Journal]

Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. ;2019 Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ. ;ISSN: 1048-891X ;EISSN: 1525-1438 ;DOI: 10.1136/ijgc-2019-ESGO.207

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14
Facilitating public and patient involvement in basic and preclinical health research
Facilitating public and patient involvement in basic and preclinical health research
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Facilitating public and patient involvement in basic and preclinical health research

PloS one, 2019-05, Vol.14 (5), p.e0216600-e0216600 [Peer Reviewed Journal]

COPYRIGHT 2019 Public Library of Science ;COPYRIGHT 2019 Public Library of Science ;2019 Maccarthy et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;2019 Maccarthy et al 2019 Maccarthy et al ;ISSN: 1932-6203 ;EISSN: 1932-6203 ;DOI: 10.1371/journal.pone.0216600 ;PMID: 31086377

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15
S3268 Development and Implementation of EGID Partners: A Global, Online, Patient-Centric Research Platform
S3268 Development and Implementation of EGID Partners: A Global, Online, Patient-Centric Research Platform
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S3268 Development and Implementation of EGID Partners: A Global, Online, Patient-Centric Research Platform

The American journal of gastroenterology, 2021-10, Vol.116 (1), p.S1347-S1347 [Peer Reviewed Journal]

2021 by The American College of Gastroenterology ;ISSN: 0002-9270 ;EISSN: 1572-0241 ;DOI: 10.14309/01.ajg.0000786604.91912.c7

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16
Opportunities and priorities for breast surgical research
Opportunities and priorities for breast surgical research
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Article 		Add to My Research

Opportunities and priorities for breast surgical research

The lancet oncology, 2018-10, Vol.19 (10), p.e521-e533 [Peer Reviewed Journal]

2018 Elsevier Ltd ;Copyright © 2018 Elsevier Ltd. All rights reserved. ;Copyright Elsevier Limited Oct 2018 ;ISSN: 1470-2045 ;EISSN: 1474-5488 ;DOI: 10.1016/S1470-2045(18)30511-4 ;PMID: 30303126

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17
“About sixty per cent I want to do it”: Health researchers’ attitudes to, and experiences of, patient and public involvement (PPI)—A qualitative interview study
“About sixty per cent I want to do it”: Health researchers’ attitudes to, and experiences of, patient and public involvement (PPI)—A qualitative interview study
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“About sixty per cent I want to do it”: Health researchers’ attitudes to, and experiences of, patient and public involvement (PPI)—A qualitative interview study

Health expectations : an international journal of public participation in health care and health policy, 2019-08, Vol.22 (4), p.721-730 [Peer Reviewed Journal]

2019 The Authors published by John Wiley & Sons Ltd ;2019 The Authors Health Expectations published by John Wiley & Sons Ltd. ;COPYRIGHT 2019 John Wiley & Sons, Inc. ;2019. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1369-6513 ;EISSN: 1369-7625 ;DOI: 10.1111/hex.12883 ;PMID: 30927334

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18
Neoantigen identification strategies enable personalized immunotherapy in refractory solid tumors
Neoantigen identification strategies enable personalized immunotherapy in refractory solid tumors
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Neoantigen identification strategies enable personalized immunotherapy in refractory solid tumors

The Journal of clinical investigation, 2019-05, Vol.129 (5), p.2056-2070 [Peer Reviewed Journal]

COPYRIGHT 2019 American Society for Clinical Investigation ;COPYRIGHT 2019 American Society for Clinical Investigation ;Copyright American Society for Clinical Investigation May 2019 ;2019 American Society for Clinical Investigation 2019 American Society for Clinical Investigation ;ISSN: 0021-9738 ;EISSN: 1558-8238 ;DOI: 10.1172/JCI99538 ;PMID: 30835255

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19
P124 High throughput multiplex immunoassays stratify patients according to symptom burden across the Lupus-Sjögren’s spectrum
P124 High throughput multiplex immunoassays stratify patients according to symptom burden across the Lupus-Sjögren’s spectrum
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P124 High throughput multiplex immunoassays stratify patients according to symptom burden across the Lupus-Sjögren’s spectrum

Lupus science & medicine, 2024-03, Vol.11 (Suppl 1), p.A129-A130 [Peer Reviewed Journal]

Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. ;2022 Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;EISSN: 2053-8790 ;DOI: 10.1136/lupus-2024-el.178

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20
Comparisons between different polychemotherapy regimens for early breast cancer: meta-analyses of long-term outcome among 100 000 women in 123 randomised trials
Comparisons between different polychemotherapy regimens for early breast cancer: meta-analyses of long-term outcome among 100 000 women in 123 randomised trials
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Comparisons between different polychemotherapy regimens for early breast cancer: meta-analyses of long-term outcome among 100 000 women in 123 randomised trials

The Lancet (British edition), 2012-02, Vol.379 (9814), p.432-444 [Peer Reviewed Journal]

Elsevier Ltd ;2012 Elsevier Ltd ;2015 INIST-CNRS ;Copyright © 2012 Elsevier Ltd. All rights reserved. ;Copyright Elsevier Limited Feb 4-Feb 10, 2012 ;2012 Elsevier Ltd. All rights reserved. 2012 Elsevier Ltd ;ISSN: 0140-6736 ;ISSN: 1474-547X ;EISSN: 1474-547X ;DOI: 10.1016/S0140-6736(11)61625-5 ;PMID: 22152853 ;CODEN: LANCAO

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