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Social justice and research using human biological material : a response to Mahomed, Nöthling-Slabbert and Pepper

SAMJ: South African Medical Journal, 2016-07, Vol.106 (7), p.678-680 [Peer Reviewed Journal]

COPYRIGHT 2016 Health & Medical Publishing Group ;COPYRIGHT 2016 Health & Medical Publishing Group ;This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. ;ISSN: 0256-9574 ;ISSN: 2078-5135 ;EISSN: 2078-5135 ;DOI: 10.7196/SAMJ.2016.v106i7.10552 ;PMID: 27384358

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Title:
Social justice and research using human biological material : a response to Mahomed, Nöthling-Slabbert and Pepper
Author: Jordaan, D.W.
Subjects: Altruism ; Analysis ; Biomedical Research - ethics ; Biomedical Research - legislation & jurisprudence ; Health Care Sciences & Services ; Health Policy ; Health Policy & Services ; Healthy Volunteers - legislation & jurisprudence ; Human experimentation in medicine ; Humans ; Medical Ethics ; Medicine, General & Internal ; Medicine, Legal ; Medicine, Research & Experimental ; Ownership - ethics ; Ownership - legislation & jurisprudence ; Self-experimentation in medicine ; Social aspects ; Social Justice ; South Africa ; Tissue Donors - ethics ; Tissue Donors - legislation & jurisprudence
Is Part Of: SAMJ: South African Medical Journal, 2016-07, Vol.106 (7), p.678-680
Description: Social justice in the context of research using human biological material is an important contemporary legal-ethical issue. A question at the heart of this issue is the following: Is it fair to expect a research participant (a person who participates in such research by, among others, making available biological material from his or her body) to participate on an altruistic basis, while the researchers and the investors in the research can gain commercially from the research? In a recent article, Mahomed, Nöthling-Slabbert and Pepper proposed that research participants should be entitled to share in the profits emanating from such research via a proposed new statutory right to the intellectual property emanating from such research. In order to stimulate debate on this important issue of social justice, this article responds to the position of Mahomed et al. by focusing on two main points: Firstly, I contend that Mahomed et al. fail to make a convincing argument in favour of shifting away from altruism; secondly, I caution against framing the debate in terms of the binary poles of altruism v. profitsharing, and suggest that should healthcare public policy ever move away from altruism, various non-monetary forms of benefit-sharing by research participants should be considered.
Publisher: South Africa: Health and Medical Publishing Group (HMPG)
Language: English;Portuguese
Identifier: ISSN: 0256-9574
ISSN: 2078-5135
EISSN: 2078-5135
DOI: 10.7196/SAMJ.2016.v106i7.10552
PMID: 27384358
Source: Sabinet African Journals Open Access Collection
SciELO
African Journals Online (Open Access)
GFMER Free Medical Journals
MEDLINE
Alma/SFX Local Collection
DOAJ Directory of Open Access Journals

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Social justice and research using human biological material : a response to Mahomed, Nöthling-Slabbert and Pepper

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