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Exploring patients’ experience using PROMs within routine post-discharge follow-up assessment after stroke: a mixed methods approach

Journal of patient-reported outcomes, 2024-12, Vol.8 (1), p.46-46 [Peer Reviewed Journal]

The Author(s) 2024 ;2024. The Author(s). ;The Author(s) 2024. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;EISSN: 2509-8020 ;DOI: 10.1186/s41687-024-00724-w ;PMID: 38668901

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Title:
Exploring patients’ experience using PROMs within routine post-discharge follow-up assessment after stroke: a mixed methods approach
Author: Mourits, B.M.P. ; den Hartog, S.J. ; de Graaf, J.A. ; Roozenbeek, B. ; Post, M.W.M. ; Visser-Meily, J.M.A. ; Scholten, E.W.M.
Subjects: Aged ; Aged, 80 and over ; Female ; Follow-Up Studies ; Humans ; Interviews as Topic ; Ischemia ; Male ; Medicine ; Medicine & Public Health ; Middle Aged ; Mixed method ; Netherlands ; Patient Discharge ; Patient perspectives ; Patient reported outcome measure ; Patient Reported Outcome Measures ; Patient Satisfaction ; Patients ; Post-discharge consultation ; PROM ; Prospective Studies ; Quality of Life Research ; Questionnaires ; Stroke ; Stroke - psychology ; Stroke - therapy ; Stroke Rehabilitation - methods ; Surveys and Questionnaires
Is Part Of: Journal of patient-reported outcomes, 2024-12, Vol.8 (1), p.46-46
Description: Background Patient Reported Outcomes Measures (PROMs) are being used increasingly to measure health problems in stroke clinical practice. However, the implementation of these PROMs in routine stroke care is still in its infancy. To understand the value of PROMs used in ischemic stroke care, we explored the patients’ experience with PROMs and with the consultation at routine post-discharge follow-up after stroke. Methods In this prospective mixed methods study, patients with ischemic stroke completed an evaluation questionnaire about the use of PROMs and about their consultation in two Dutch hospitals. Additionally, telephone interviews were held to gain in-depth information about their experience with PROMs. Results In total, 63 patients completed the evaluation questionnaire of which 10 patients were also interviewed. Most patients (82.2–96.6%) found completing the PROMs to be feasible and relevant. Half the patients (49.2–51.6%) considered the PROMs useful for the consultation and most patients (87.3–96.8%) reported the consultation as a positive experience. Completing the PROMs provided 51.6% of the patients with insight into their stroke-related problems. Almost 75% of the patients found the PROMs useful in giving the healthcare provider greater insight, and 60% reported discussing the PROM results during the consultation. Interviewed patients reported the added value of PROMs, particularly when arranging further care, in gaining a broader insight into the problems, and in ensuring all important topics were discussed during the consultation. Conclusions Completing PROMs appears to be feasible for patients with stroke attending post-discharge consultation; the vast majority of patients experienced added value for themselves or the healthcare provider. We recommend that healthcare providers discuss the PROM results with their patients to improve the value of PROMs for the patient. This could also improve the willingness to complete PROMs in the future.
Publisher: Cham: Springer International Publishing
Language: English
Identifier: EISSN: 2509-8020
DOI: 10.1186/s41687-024-00724-w
PMID: 38668901
Source: MEDLINE
PubMed Central
ProQuest Central
DOAJ Directory of Open Access Journals
Springer Nature OA Free Journals

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Exploring patients’ experience using PROMs within routine post-discharge follow-up assessment after stroke: a mixed methods approach

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