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Patient‐reported outcome measures (PROMs): A review of generic and condition‐specific measures and a discussion of trends and issues

Health expectations : an international journal of public participation in health care and health policy, 2021-08, Vol.24 (4), p.1015-1024 [Peer Reviewed Journal]

2021 The Authors. published by John Wiley & Sons Ltd. ;2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. ;2021. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1369-6513 ;EISSN: 1369-7625 ;DOI: 10.1111/hex.13254 ;PMID: 33949755

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  • Title:
    Patient‐reported outcome measures (PROMs): A review of generic and condition‐specific measures and a discussion of trends and issues
  • Author: Churruca, Kate ; Pomare, Chiara ; Ellis, Louise A. ; Long, Janet C. ; Henderson, Suzanna B. ; Murphy, Lisa E. D. ; Leahy, Christopher J. ; Braithwaite, Jeffrey
  • Subjects: Arthritis ; Cancer ; Cardiovascular disease ; Cardiovascular diseases ; Clinical decision making ; Conditions ; Consumers ; Decision making ; Grey literature ; Health care ; Health status ; Keywords ; Lung cancer ; Mental disorders ; Mental health ; patient safety ; Patient satisfaction ; Patients ; patient‐reported outcome measure ; PROM ; Quality of life ; Questionnaires ; Review ; Search engines ; Trends ; Validity ; Websites
  • Is Part Of: Health expectations : an international journal of public participation in health care and health policy, 2021-08, Vol.24 (4), p.1015-1024
  • Description: Background Patient‐reported outcome measures (PROMs) are questionnaires that collect health outcomes directly from the people who experience them. This review critically synthesizes information on generic and selected condition‐specific PROMs to describe trends and contemporary issues regarding their development, validation and application. Methods We reviewed academic and grey literature on validated PROMs by searching databases, prominent websites, Google Scholar and Google Search. The identification of condition‐specific PROMs was limited to common conditions and those with a high burden of disease (eg cancers, cardiovascular disorders). Trends and contemporary issues in the development, validation and application of PROMs were critically evaluated. Results The search yielded 315 generic and condition‐specific PROMs. The largest numbers of measures were identified for generic PROMs, musculoskeletal conditions and cancers. The earliest published PROMs were in mental health‐related conditions. The number of PROMs grew substantially between 1980s and 2000s but slowed more recently. The number of publications discussing PROMs continues to increase. Issues identified include the use of computer‐adaptive testing and increasing concerns about the appropriateness of using PROMs developed and validated for specific purposes (eg research) for other reasons (eg clinical decision making). Conclusions The term PROM is a relatively new designation for a range of measures that have existed since at least the 1960s. Although literature on PROMs continues to expand, challenges remain in selecting reliable and valid tools that are fit‐for‐purpose from the many existing instruments. Patient or public contribution Consumers were not directly involved in this review; however, its outcome will be used in programmes that engage and partner with consumers.
  • Publisher: England: John Wiley & Sons, Inc
  • Language: English
  • Identifier: ISSN: 1369-6513
    EISSN: 1369-7625
    DOI: 10.1111/hex.13254
    PMID: 33949755
  • Source: Journals@Ovid Open Access Journal Collection Rolling
    PubMed Central
    Wiley Online Library Open Access
    ProQuest Central
    DOAJ Directory of Open Access Journals
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