Language:

Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study

PloS one, 2023-05, Vol.18 (5), p.e0285213-e0285213 [Peer Reviewed Journal]

Copyright: © 2023 Muñoz-Violant et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. ;COPYRIGHT 2023 Public Library of Science ;2023 Muñoz-Violant et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;2023 Muñoz-Violant et al 2023 Muñoz-Violant et al ;2023 Muñoz-Violant et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;ISSN: 1932-6203 ;EISSN: 1932-6203 ;DOI: 10.1371/journal.pone.0285213 ;PMID: 37141278

Full text available

Citations Cited by

Actions
1. Add to My Research
2. Remove from My Research
3. E-mail
4. Print
5. Permalink
6. Citation
7. EasyBib
8. EndNote
9. RefWorks
10. Delicious
11. Export RIS
12. Export BibTeX

Title:
Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study
Author: Muñoz-Violant, Sarah ; Violant-Holz, Verónica ; Rodríguez, Manuel J
Khraisat, Omar M
Subjects: Adaptation, Psychological ; Adolescent ; Analysis ; Anxiety ; Biology and Life Sciences ; Caregivers ; Caregivers - psychology ; Child ; Child, Preschool ; Children ; Children & youth ; Chronic illnesses ; Clinical medicine ; Cognitive ability ; Congenital diseases ; Convalescence ; Coping ; Cross-Sectional Studies ; Demographic aspects ; Disease ; Emotions ; Families & family life ; Health aspects ; Hospital care ; Hospitalization ; Humans ; Infants ; Intensive care ; Medical personnel ; Medicine and Health Sciences ; Mental health ; Patient outcomes ; Pediatrics ; Peers ; People and Places ; Physical Sciences ; Pilot Projects ; Psychological aspects ; Quality of Life ; Questionnaires ; Research and Analysis Methods ; Self esteem ; Social networks ; Social Sciences ; Sociodemographics ; Surveys ; Teenagers ; Variables ; Voice communication ; Youth
Is Part Of: PloS one, 2023-05, Vol.18 (5), p.e0285213-e0285213
Description: Well-being in children with a complex medical condition (CMC) impacts the way they view and communicate with their immediate environment as well as their development, and it is thus necessary to inquire about the contextual issues and different needs that a CMC carries. This pilot study aimed to identify factors of pediatric well-being from the experience of hospitalization and convalescence of youth with CMC and their caregivers, in a cross-sectional analysis using a selective methodology complemented by an indirect observational methodology. We analyzed the quality of life and well-being of youth with CMC using a validated KINDLR questionnaire. We collected 35 surveys: 11 from youth with CMC and 24 from caregivers from Spain. We focused the analysis on sociodemographics, well-being perceptions, and coping strategies variables. The results show that children aged between 3 and 6 years and their caregivers scored physical well-being the lowest out of all dimensions of well-being, and they scored family well-being the highest. Moreover, youth between the ages of 7 and 17 years and their caregivers scored school-related well-being the lowest. Coping strategies to deal with stressful situations differ between children and caregivers. While children mainly engage in social withdrawal, caregivers engage in cognitive restructuring and expressing emotions. However, we did not find a relationship between coping strategies and well-being perceptions. These results highlight the need to facilitate communication spaces with both families and health professionals where the voice of children is considered.
Publisher: United States: Public Library of Science
Language: English
Identifier: ISSN: 1932-6203
EISSN: 1932-6203
DOI: 10.1371/journal.pone.0285213
PMID: 37141278
Source: GFMER Free Medical Journals
MEDLINE
PubMed Central
Coronavirus Research Database
Public Library of Science (PLoS)
ProQuest Central
DOAJ Directory of Open Access Journals

Back to results list


INSPIRE LIBRARY - TON DUC THANG UNIVERSITY	(84-028) 37 755 057	Feedback
19 Nguyen Huu Tho St. Dist.7, HCM	thuvien@tdtu.edu.vn	Feedback

Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study

Searching Remote Databases, Please Wait