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Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study

Journal of autism and developmental disorders, 2021-11, Vol.51 (11), p.4129-4146 [Peer Reviewed Journal]

The Author(s) 2021 ;2021. The Author(s). ;COPYRIGHT 2021 Springer ;The Author(s) 2021. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;Distributed under a Creative Commons Attribution 4.0 International License ;ISSN: 0162-3257 ;ISSN: 1573-3432 ;EISSN: 1573-3432 ;DOI: 10.1007/s10803-021-04873-5 ;PMID: 33502713

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Title:
Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study
Author: Scattoni, Maria Luisa ; Micai, Martina ; Ciaramella, Antonio ; Salvitti, Tommaso ; Fulceri, Francesca ; Fatta, Laura Maria ; Poustka, Luise ; Diehm, Robert ; Iskrov, Georgi ; Stefanov, Rumen ; Guillon, Quentin ; Rogé, Bernadette ; Staines, Anthony ; Sweeney, Mary Rose ; Boilson, Andrew Martin ; Leósdóttir, Thora ; Saemundsen, Evald ; Moilanen, Irma ; Ebeling, Hanna ; Yliherva, Anneli ; Gissler, Mika ; Parviainen, Tarja ; Tani, Pekka ; Kawa, Rafal ; Vicente, Astrid ; Rasga, Célia ; Budişteanu, Magdalena ; Dale, Ian ; Povey, Carol ; Flores, Noelia ; Jenaro, Cristina ; Monroy, Maria Luisa ; Primo, Patricia García ; Charman, Tony ; Cramer, Susanne ; Warberg, Christine Kloster ; Canal-Bedia, Ricardo ; Posada, Manuel ; Schendel, Diana
Subjects: Adult ; Adults ; Autism ; Autism Spectrum Disorder - diagnosis ; Autistic adults ; Autistic Disorder - diagnosis ; Behavioral Science and Psychology ; Caregivers ; Child and School Psychology ; Clinical Diagnosis ; Clinical guidelines ; Demographic aspects ; Diagnosis ; Diagnostic Services ; European Union ; Evaluation ; Foreign Countries ; Guidelines ; Humans ; Life Sciences ; Medical diagnosis ; Medicin och hälsovetenskap ; Neurosciences ; Original Paper ; Pediatrics ; Pervasive Developmental Disorders ; Practice guidelines (Medicine) ; Psychology ; Public Health ; Risk factors ; Santé publique et épidémiologie ; Services ; Support services ; Surveys and Questionnaires
Is Part Of: Journal of autism and developmental disorders, 2021-11, Vol.51 (11), p.4129-4146
Description: Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.
Publisher: New York: Springer US
Language: English
Identifier: ISSN: 0162-3257
ISSN: 1573-3432
EISSN: 1573-3432
DOI: 10.1007/s10803-021-04873-5
PMID: 33502713
Source: ProQuest One Psychology
Education Resources Information Center (ERIC)
SpringerOpen
AUTh Library subscriptions: ProQuest Central
Hyper Article en Ligne (HAL) (Open Access)
MEDLINE
SWEPUB Freely available online

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Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study

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