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'24/7' Caregiving: A Qualitative Analysis of an Emerging Phenomenon of Interest in Caregiving

International journal of environmental research and public health, 2022-12, Vol.19 (24), p.17046 [Peer Reviewed Journal]

2022 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. ;2022 by the authors. 2022 ;ISSN: 1660-4601 ;ISSN: 1661-7827 ;EISSN: 1660-4601 ;DOI: 10.3390/ijerph192417046 ;PMID: 36554924

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  • Title:
    '24/7' Caregiving: A Qualitative Analysis of an Emerging Phenomenon of Interest in Caregiving
  • Author: Chew, Esther Yin Hui ; Ong, Zhi Lei ; Glass, Jr, George Frederick ; Chan, Ee-Yuee
  • Subjects: Caregiver Burden ; Caregivers ; Caregivers - psychology ; Coronaviruses ; COVID-19 ; COVID-19 - epidemiology ; Dementia ; Dementia - psychology ; Dementia disorders ; Humans ; Neighborhoods ; Older people ; Pandemics ; Qualitative analysis ; Qualitative Research ; Responsibilities
  • Is Part Of: International journal of environmental research and public health, 2022-12, Vol.19 (24), p.17046
  • Description: The COVID-19 pandemic has exacerbated the difficulties faced by caregivers who have to provide continuous '24/7' care to persons with dementia with minimal formal and informal support. While caregivers have reported heightened levels of caregiving distress and burden during the pandemic, there remains a dearth of research pertaining to their lived experiences of providing continuous care with little respite and the corresponding physical, psychosocial and emotional impacts of caregiving '24/7'. The present study uses data obtained from interviews with dementia caregivers (N = seven) that were collected as part of a larger study on Carer Matters, a hospital-based holistic caregiver support program held during COVID-19, to conduct a secondary thematic analysis. The findings revealed three themes that defined the shared experiences of '24/7' caregivers: (1) A World Overturned, which refers to the increase in caregiving intensity and burden due to the pandemic; (2) Burning on Both Ends, which refers to the impossible balance between caregiving and their personal lives; and (3) At Wits' End, which refers to an overwhelming sense of hopelessness and helplessness over their caregiving situation. These findings highlight the challenges and unsustainability of '24/7' caregiving and the detrimental impact that round-the-clock care wields on caregivers' physical and mental well-being. Implications and recommendations are discussed in accordance with the cultural particularities of the study's Asian context (Singapore), with calls for greater caregiver support to be better integrated into society and the community, especially at the neighborhood and grassroots level, to alleviate caregiving burden and safeguard their well-being.
  • Publisher: Switzerland: MDPI AG
  • Language: English
  • Identifier: ISSN: 1660-4601
    ISSN: 1661-7827
    EISSN: 1660-4601
    DOI: 10.3390/ijerph192417046
    PMID: 36554924
  • Source: Geneva Foundation Free Medical Journals at publisher websites
    AUTh Library subscriptions: ProQuest Central
    MEDLINE
    PubMed Central
    Coronavirus Research Database
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