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Improving Privacy in Aged Care Monitoring Devices: An Investigation Based on Multiple Stakeholders’ Perspectives
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Title:
Improving Privacy in Aged Care Monitoring Devices: An Investigation Based on Multiple Stakeholders’ Perspectives
Author:
Alkhatib, Sami Mahmoud Abed
Subjects:
Aged Care
;
Caregivers
;
Empirical studies in collaborative and social computing
;
Human and societal aspects of privacy
;
Older Adults
;
Privacy by Design
;
Privacy Problems
;
Technology Developers
;
Ubiquitous and Mobile Devices
Description:
The rapid increase in the number of older adults in developed countries has raised concerns about their well-being and increasing need for healthcare services. New technologies are being used to create Aged Care Monitoring Devices (ACMDs) to support older adults as they age. ACMDs collect and share information about older adults in real-time to support their wellbeing. Monitoring devices provide older adults and their caregivers with peace of mind; these devices have the capability to inform caregivers about concerning indicators related to older adults’ wellbeing as soon as they are detected. While ACMDs have many potential benefits, they pose significant privacy challenges. The core functions of monitoring technologies are to collect data from older adults, their surrounding environment and to share that data with others. The data collected will contain personal details that might be deemed sensitive by older adults. Although there is a growing recognition that ACMDs should maintain a balance between protecting older adults’ privacy and the value proposition of these devices, there has been limited research that builds on ACMD developers’, older adults’ and caregivers’ views to improve privacy in the development and use of monitoring devices. This thesis investigates the research question: How can privacy be improved in the development and use of ACMDs? Drawing on Solove’s privacy Taxonomy and the Privacy by Design Framework, this thesis reports findings from three in-depth qualitative studies comprising interviews with developers and users of ACMDs, along with one systematic literature review that sought to understand how privacy is conceptualised in published reports of ACMDs. The findings informed an ACMD privacy framework that identifies, explains and categorises the privacy problems that ACMD developers and users are concerned about in the development and use of ACMDs. The framework highlights the matches and mismatches between different stakeholders’ views on privacy in ACMDs. Older adults and caregivers appeared to be more concerned about the social aspects in relation to privacy in ACMDs. That is, older adults were mainly worried about what information ACMDs can share with others, who has access to their data, and when others can access and use it. By contrast, ACMD developers were more interested in addressing privacy problems that require technical solutions, such as data security and unauthorised data accessibility threats. This points to a gap between users' privacy requirements and the privacy solutions created by technology developers in ACMDs. The thesis also provides an overview of the factors that impact how technology developers address privacy in ACMD and the values and preferences that intersect with the users’ perceptions on privacy in ACMDs. The findings of the research contribute to the literature on privacy in ACMDs, particularly in the fields of Health Informatics and Human-Computer Interaction. This thesis provides implications for ACMD developers to uphold older adults' privacy in the use of monitoring devices and suggests future research directions to continue developing an understanding of people’s diverse views on privacy and how it should be addressed in ACMDs. Source: TROVE
Creation Date:
2021
Language:
English
Source:
Trove Australian Thesis (Full Text Open Access)
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