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Palliative care in paediatric oncology - a national parental perspective

Läkartidningen, 2024-04, Vol.121 [Peer Reviewed Journal]

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Title:
Palliative care in paediatric oncology - a national parental perspective
Author: Stenmarker, Margaretha ; Pohlkamp, Lilian ; Sveen, Josefin ; Kreicbergs, Ulrika
Subjects: Child ; Death ; Humans ; Neoplasms - therapy ; Pain ; Palliative Care ; Parents
Is Part Of: Läkartidningen, 2024-04, Vol.121
Description: The WHO definition of paediatric palliative care (PPC) emphasises the role of active multidimensional care, carried out with interdisciplinary competence, and providing support to the entire family. The aim of the current national study was to investigate whether parents perceived that their child received palliative care (PC) before the child died of cancer and the parent's view of the care during the child's last month of life. In 2016, parents (n=226) completed a study-specific survey, and a majority reported that their child had received PC with good professional competence. However, many parents reported that the child was greatly affected by pain in the last month of life. Geographical differences indicated that parents who live in sparsely populated areas to a lesser extent reported that their child received PC. Lastly, our conclusion is that access to equal PPC and improved symptom control is crucial for children and their families.
Publisher: Sweden
Language: Swedish
Identifier: EISSN: 1652-7518
PMID: 38591840
Source: MEDLINE
Alma/SFX Local Collection

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