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Supporting quality public and patient engagement in health system organizations: development and usability testing of the Public and Patient Engagement Evaluation Tool

Health expectations : an international journal of public participation in health care and health policy, 2016-08, Vol.19 (4), p.817-827 [Peer Reviewed Journal]

2015 The Authors. Published by John Wiley & Sons Ltd. ;2015 The Authors. Health Expectations Published by John Wiley & Sons Ltd. ;Copyright © 2016 John Wiley & Sons Ltd ;ISSN: 1369-6513 ;EISSN: 1369-7625 ;DOI: 10.1111/hex.12378 ;PMID: 26113295

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  • Title:
    Supporting quality public and patient engagement in health system organizations: development and usability testing of the Public and Patient Engagement Evaluation Tool
  • Author: Abelson, Julia ; Li, Kathy ; Wilson, Geoff ; Shields, Kristin ; Schneider, Colleen ; Boesveld, Sarah
  • Subjects: Canada ; Collaboration ; Delphi Technique ; Email ; End users ; Health Care Sector ; Health Planning ; Health Policy ; Health Priorities ; Humans ; Leadership ; Morality ; Needs Assessment ; Original Research Paper ; Original Research Papers ; Patient Participation ; Policy Making ; public and patient engagement evaluation ; public and patient engagement in health system decision making ; public and patient involvement ; Questionnaires ; Researchers ; Surveys and Questionnaires
  • Is Part Of: Health expectations : an international journal of public participation in health care and health policy, 2016-08, Vol.19 (4), p.817-827
  • Description: Objectives Only rudimentary tools exist to support health system organizations to evaluate their public and patient engagement (PPE) activities. This study responds to this gap by developing a generic evaluation tool for use in a wide range of organizations. Methods The evaluation tool was developed through an iterative, collaborative process informed by a review of published and grey literature and with the input of Canadian PPE researchers and practitioners. Over a 3‐year period, structured e‐mail, telephone and face‐to‐face exchanges, including a modified Delphi process, were used to produce an evaluation tool that includes core principles of high‐quality engagement, expected outcomes for each principle and three unique evaluation questionnaires that were tested and revised with input from 65 end users. Results The tool is structured around four core principles of ‘quality engagement’: (i) integrity of design and process; (ii) influence and impact; (iii) participatory culture; and (iv) collaboration and common purpose. Three unique questionnaires were developed to assess each of these four evaluation domains from the following perspectives: (i) those who participate in PPE activities; (ii) those who plan, execute or sponsor PPE activities within organizations; and (iii) those who provide the leadership and capacity for PPE within their organizations. Conclusions This is the first known collaboration of researchers and practitioners in the co‐design of a comprehensive PPE evaluation tool aimed at three distinct respondent groups and for use in a wide range of health system organization settings.
  • Publisher: England: John Wiley & Sons, Inc
  • Language: English
  • Identifier: ISSN: 1369-6513
    EISSN: 1369-7625
    DOI: 10.1111/hex.12378
    PMID: 26113295
  • Source: Journals@Ovid Open Access Journal Collection Rolling
    MEDLINE
    Wiley Open Access
    PubMed Central
    ProQuest Central
    DOAJ Directory of Open Access Journals
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